The 25 essays in Bodies of Truth are by people who live with a chronic illness or disability. It was published by the University of Nebraska Press in 2019. Because most of the writers are patients, it’s a good companion to Where It Hurts, a collection of essays written by doctors, nurses, and other health care workers that was published by Intima Journal in 2026.
I scheduled an appointment with my urologist, the first one with him since my cancer treatments ended, the anti-hormone drug was completely out of my system, and the temporary side effects of radiation were gone. This will be a reality check about what changes in my body I may have to live with. My urologist asks – “What questions do you have?”
I think there is a better approach, and I think it’s important because my questions are limited to what I know to ask about. I’d rather be entertained by his fishing expedition even if I don’t know why he’s asking about certain things. I figure they’re diagnostic.
This is an aspect of cancer care that I’ve been waiting for — the emotions of a doctor caring for cancer patients.
I discovered the writing of Dr. Laura Vater because her essay “Goodbye Stethoscope” was also in the 2025 issue of The Examined Life Journal published by the Carver College of Medicine in Iowa. I was drawn in by its honesty and compassion.
Anne Lamott tells the story of having her tonsils taken out as an adult. After two weeks, her prescription for painkillers ran out. She called the doctor’s office to get a new prescription, and the nurse said No. The nurse told her to chew gum vigorously, which is the last thing that Lamott wanted to do with a painful throat.
George Beauregard is a doctor who writes about his bladder cancer and his son Patrick’s colon cancer in Reservations for Nine (2025). It’s a heartbreaking account that shares the harsh realities and tragedies of cancer, and he recounts his family’s struggles and courage while twice confronting the unthinkable. From his experiences with cancer as a patient, a parent, and as a doctor, he shares what he has learned.
My thanks to Cassandra Isley for telling me about this book. I knew little about colon cancer before reading it.
Going through cancer treatments is traumatic. If you have cancer, there are days when you bare-knuckle your way through with clenched teeth and a determined “Don’t get in my way” stare. What helps us cope is keeping a journal, writing down what is going on, what our doctors are saying, what we are thinking, and how we are physically and emotionally doing with all of this.
Those who have cancer don’t need words of sympathy. They need empathy, hugs, and presence.
When we have cancer, we no longer rush about in our daily lives trying to maximize the work we get done, to get from Point A to Point Z as quickly as possible. We linger with others, ponder, sit, reflect with a second cup of coffee. Ponder some more. The destination no longer seems as important as what we are experiencing on the journey, and our journey now includes cancer. Our goal is to be present to this moment and take care of others who are suffering the best we can.
We know that children get cancer. It’s in the news often enough. Every time we hear of another child with cancer, it troubles our hearts and makes us question the goodness of the universe. I know, goodness isn’t a concern of the universe; nor is fairness, but it’s still how I react. When I was undergoing radiation, the therapists put cutouts of different animals on the cherry tree painted on the ceiling to give kids something to discover as they go through treatments.
Courses on narrative medicine are offered in some premed programs and medical schools. They are an important addition to the scientific coursework because they remind future doctors and nurses that they, and their patients, are human beings who have emotions that need to be tended to. The courses train medical people how to listen and interpret what patients say, as well as notice when patients are reluctant to share something. These courses aren’t offered at every medical school, and generally there is only one course. But it creates an awareness of the gift of listening that strengthens as the years go on.
Where It Hurts: Dispatches from the Emotional Frontlines of Medicine, 2026, ed. by Donna Bulseco, Intima Journal.
What I love about this book, among many reasons, is that it shares the emotions of the people who cope with stress, fatigue, and burnout as they care for people, day after day, who are seriously ill. The accounts cover the gamut of care by doctors, nurses, EMTs, and therapists who speak of the emotional toll on them, especially when they have to deliver bad news. This is a side of our doctors and nurses that we seldom see.
