As it is for my friends, the thought of dying is never far from my mind. It is a possibility, and my oncologist hasn’t said that I’m not, so I exist in a netherworld where I hold my breath and wonder when it will happen and how. He actually thinks I’m doing quite well. He said so, after I asked, because the dread of dying was weighing heavily on me that day.
Having cancer isn’t funny, but that doesn’t mean we have to stop telling jokes.
What makes Bowler’s book significant in the world of books about cancer is that she is dying and she’s not. She has Stage 4 colon cancer that is being held at bay by experimental chemotherapy and immunotherapy, and lives two months at a time, from one checkup to the next. If the checkup is good, then she knows she has two more months of life. If it’s not, then she knows to start saying goodbye.
Effective health care begins when patients feel their concerns are being heard and they are involved in deciding their course of treatments. Atul Gawande’s books speak of the need for patients to feel empathy from their doctors, and of the challenges that doctors face to provide the right care. He writes eloquently from the doctor’s perspective and tells stories in a narrative voice rather than using the language of clinical reports that cite case studies. Doctors and nurses find in him a kindred voice.
